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Resources

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The Eve Appeal

The Eve Appeal: The leading UK national charity funding research and raising awareness into five gynaecological cancers – uterine, ovarian, cervical, vulval and vaginal. They actively support research on SCCOHT.

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Small Cell Ovarian Cancer Foundation

Foundation: Provides Support & Resources for those suffering from Small Cell Ovarian Cancer.

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Katie Oppo Research Fund

The mission of the Katie Oppo Research Fund (KORF) is to increase awareness and fund research for the prevention, treatment, and cure of Small Cell Carcinoma of the Ovary Hypercalcemic Type (SCCOHT) and other ovarian cancers.

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CSS foundation

To connect, support, and inform the Coffin Siris Syndrome community and to promote related research.



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Resources

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2020

Small Cell Carcinoma of the Ovary, Hypercalcaemic Type – genetics, new treatment targets and current management guidelines

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2019

An In-Depth Look at Small Cell Carcinoma of the Ovary, Hypercalcemic Type (SCCOHT): Clinical Implications from Recent Molecular Findings

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2017

Rhabdoid Tumor Predisposition Syndrome

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2016

The hereditary nature of small cell carcinoma of the ovary, hypercalcemic type: two new familial cases

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2015

Cancer Revealed: How the Immune System Sees and Destroys Tumors, with Jeffrey Weber




---- More About the Diseases ----

Additional Resources

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2021

About ATRT

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2021

About SCCOHT

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2021

About CSS

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The SCCOHT-SMARCA4 Registry provides the research community access to information and resources to support efforts to better understand the very rare disease that is SCCOHT and the consequences of bearing a SMARCA4 variant.

sccoht@rimuhc.ca

438-728-6685

Quick Links

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Anyone interested in participating in this Registry or desiring more information can contact us directly by email or via this website.

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